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Michelleanne
Comments
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Hi Helen so sorry you are feeling so unwell , I have painful joints and skin gvhd , another thing to add to the long list , I thought at the beginning of all this , that my bone marrow donor would put things right ( how silly am I ) I can cope with all this I suppose at least I’m still here i totally agree if I lived on my…
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Hi helen I have my recent numbers , my consultant has sent me them , my GP has said it has gone up a lot since having my transplant , have to increase my thyroxin as of today and a blood test in 4 weeks , my iron level is very high 2,000 and something it should be 500 , but my blood count isn’t high enough , so have to…
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Hi , helen i feel the same as you , one step forward to two back , I’m waiting to go and give blood because my iron is dangerously high , but my blood count isn’t high enough yet , also my thyroid count is high and I have high cholesterol so I have more medication to take , never had any bother with either before , so I’m…
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Hi all sorry to hear you are feeling very down , we had Christmas with our immediate family and our new year eves was a early night with a hot chocolate and my book , we don’t mix with people like we did before , we always wear a mask when we are out which isn’t often , it’s a new way of life ,I take each day at a time ,…
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Hi audrey So sorry you’re daughter is back in hospital , I hope she gets home soon , I was exactly the same , I’ve have the virus , borderline hospital the doctor managed with steroids and antibiotics , still had it over a month , nevermind hope you had a lovely Christmas , wish you lots of love and strength , and you’re…
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Hi helen happy new year , to you all we wish you health & happiness michelleanne
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Hi audrey You sound so much brighter than you have in the past few months , I too feel I’ve made some amazing friends on here , enjoy you’re Christmas I wish you lots of happiness , love I’m always here if needed take care michelleanne
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Hi helen we will count our blessings , in our own way and in anyway we can , try not to look to far forward , enjoy one day at a time , I know what you mean about things been annoying I feel like that sometimes , im sat thinking about my donor , wondering what he’s doing , and what a wonderful thing he did for me . you are…
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Thankyou Liam that’s nice to know best wishes michelleanne
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Hi audrey i hope the gvhd eases , she’s a strong fighter and you are doing amazing looking after her my husband has turned into a amazing nurse and carer for a man who has never had to do anything , he cooks , washers everything , he puts up with a lot . it’s wonderful news that’s she’s going home for Christmas , I hope…
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Hi audrey hows your daughter doing michelleanne
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Hi Helen I totally understand you , what upsets me is people say you look so well are you ok now , I don’t answer them now , im so glad i reached out , I’m so happy to message you all , I just feel I want to give you a big hug the kindness we are shown on this forum is wonderful keep strong micheeleanne
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Hi helen my leukaemia was caused by treatment for Hodgkin’s disease, intensive chemo and radio therapy, i too have a fantastic team, it is the toughest battle , I’m the same , we don’t meet people apart from our immediate family and grandchildren I’m so sorry you are having a bad time , hope you have a better day tomorrow…
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Hi audrey it is a very long journey , harder for some than others all depending on our treatment , we will all get there , with a fight and a lots of love and support . this forum helps me greatly , reminds me of what a wonderful world we live in and that there is selfless people in it , that gives people the gift of life…
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Hi Helen , Dave audrey helen you are doing amazing , you are right it is one step forward and two back , keep up the good fight best wishes michelleanne
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Hi Audrey so pleased to hear ,your daughter is a little better , I had problems with my liver I was very jaundice , they didn’t know no what caused it you are doing amazing , we couldn’t do it without the love and support of loved ones keep strong , please keep in touch hope all is well helen & beagle girl best wishes…
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Hi Dave t i was exactly the same , and 2 yrs on I still struggle with my appetite , but I totally agree we have all come a very long way from where we were best wishes michelleanne
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Hi audrey hows you’re daughter doing , hope she feels a little better, michelleannexx
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Hi audrey i was told before my treatment what could happened , but no one can prepare you for it it was the worst time in my life , things came very close a few times , and my husband was called in which I have just found out by accident I lost over 3 stone in weight , our grandchildren are a godsend keep yourselve well…
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Hi Helen and audrey I was the same with nappies , I also put things away in my mind , but I had a councillor afterwards through Maggies and macmillan and she helped us greatly , maybe that would help you all , it really helps to come to terms with it all audrey I think you are doing an amazing job , I know you’re daughter…
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Hi audrey, I had days like that , hopefully tomorrow will be a better day , my husband said that , he and family , couldn’t visit me because of covid it was months before I saw them 8 months before I saw our eldest daughter and her children, if like me , I’m stubborn and it’s not going to beat me , I have a wonderful…
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Hi all I know exactly how you all feel , we face different challenges everyday , I never thought it would be this hard , but at least I’m here , I try and not be so hard on my self , I do agree I find out more from this app , sharing people’s experiences you are all in my thoughts remember you never walk alone michelleanne
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Hi beagle girl my lines had to come out because they couldn’t find my infections , they put me on a drip for a few days , with antibiotics as they struggled to get some , that I wasn’t ellergic to hope all goes ok after getting his lines out best wishes michelleanne
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Hi helen im the same as you , also get a lot out of this forum , you all understand what I’m talking about , as we’ve all been there , where drs understand but not like all of us you help me so much and I’m very grateful love & best wishes michelleanne
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Hi audrey your daughter sounds like she is making good progress , wish I could have managed that , it was very hard for me to eat , as I had a feeding tube in , i manage little better now , I’m a weird fussy eater no tastebuds , and a sore throat I’m worse than the grandchildren , I’m always getting wrong for not cleaning…
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Hi meerkat , I am exactly the same , I’ve been told not too be so hard on my self , with what you go through . it does get frustrating , my thyroid levels change , I’m at the age too a menopausal woman , but have been for 26 years since having non Hodgkin’s lymphoma , that’s what caused the leukaemia this time , I am also…
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Hi helen i can’t get anything like that I walk the stairs and do chair exercises but doesn’t help , maybe I need to be more patient best wishes michelleanne
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Hi everyone I eat the weirdest of food , I’m off instant coffee , meat , alcohol anything fizzy , I enjoy nice soft bread and butter lovely to hear from you all michelleanne
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Hi Helen I was given supplement drinks when I first came home special food because I had a feeding pipe in , anything is better than nothing I suppose michelleanne
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Hi I’m 2years post bmt and lately I am having pains in my legs , hip and other joints , I haven’t had steroids , no help since I came home , apart from pain killers don’t know what it is , the hospital say you can get different side effects so see how I go best wishes michelleanne