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Michelleanne
Comments
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Hi Dave I am still the same with my food now after 2years , but I don’t have good tastebuds , with having radiotherapy after having non Hodgkin lymphoma , 26 years ago , then having a bmt for leukaemia so I eat less than a child and only food I fancy which some days isn’t a lot and it’s forced , I’m more a pudding and…
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Hi audrey so pleased to hear you’re daughter is managing at home , I was exactly the same , take one day at a time , we are all at different stages . Don’t expect too much I found my eating habits have changed so much , I eat what I fancy , I lived on soup , ready brek and milky coffee I still don’t eat a lot , I don’t eat…
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Hi babs hope your daughter is making steady progress, it is a very rough ride for everyone involved , it is a new way of life for me too , wish I’d found this forum early best wishes michelleanne
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Hi auds21 so happy to hear your daughter is home , I’m sure it will , take all the help you can to help her I lost over 3 stone , now 2 yrs on ihave regained some of my weight , take one day at a time take care keep in touch michelleanne
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Hi all thats wonderful news audrey , about your daughter coming home , so pleased for you all keep up the good work this is the turn around we were talking about , her little boys will be so excited , I know how strange it will be, hi beagle girl sorry to hear about your husband , it is a very rough time for everyone , I…
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Hi Steve it is very helpful , to hear how people are coping and have coped , the specialists are amazing people and we are so lucky to have them reading what other patients have gone through has helped me so much , in a way that drs can’t , and I’m very grateful for that please keep in touch everyone together we’ll get…
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Hi auds thats wonderful news , so pleased to hear that ,it is very hard time for everyone , and worrying You’re daughter is now going on the uphill turn I’m always here to help if I can it’s my way of giving something back good luck and I hope everyone goes from strength to strength keep in touch xx
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Hi helen thankyou for that tip I’ll have a look michelleanne
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Hi audrey sorry to hear you’re daughter has had another rough day , hopefully they will get things sorted soon I hope people find this site as helpful as we have you and yours are always in my thoughts and prayers keep strong take care
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Hi , to you both i understand where you are coming from , I never saw my husband and family for 8 months or a visitor because of covid , i used FaceTime on my iPad or phone everyday so I could keep in touch , give me something to look forward and to see our grandchildren the doctors will be discussing her treatment behind…
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Hi audrey please do , I hope things start to get better and she turns the corner for your daughter and everyone who is struggling best wishes
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Hi audrey this site is a good life line to me , talking to other people who have gone through and their loved ones , I’m eternally grateful to Anthony Nolan trust and the nhs for what they have done , for me and others , I hope we all get to living a happy and wonderful life , I hope your daughter feels better soon and her…
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Hi Helen I feel the same , we don’t go anywhere , I get all my shopping delivered , we met friends for coffee , it was nice to do something normal
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Hi helen maybe it is , it’s strange that you feel close to strangers , we are right with you everyday,
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Hi pleased to hear your daughter is a bit brighter today , pleased all this helps you , it helps be a great deal keep strong best wishes michelleanne
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Hi Helen , audrey i totally agree that having a positive attitude does help , and having someone to talk to really helps , but it still is very hard the site really helps me because we have and are going through it audrey I was exactly the same my pic was changed to a Hickman line , let her cry , has the hospital got…
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Hi Helen yeah we are still and I’m so blessed , it is a struggle , we should start a club lol
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Pleased to hear things are starting to look up , we have all been through a lot , I can’t remember a lot of what went on , I was in hospital 8 months spells in icu which I can’t recall I can’t think of how many close calls I had but with love and great support and trust in my team of dr and professors wonderful nurses and…
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Hi aud good to hear her temp is coming down , we have a wonderful nhs , we wouldn’t be here otherwise and this wonderful charity , hope it’s going to be a better day today give her our best wishes michelleanne
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Hi all keep strong , I’m sending my love and best wishes , I was exactly the same , you think things aren’t going to get better , but it does , it is a worrying time I’m not too bad take one day at a time it’s weird not going for check ups all the time , I miss them all at the hospital keep strong and keep in touch…
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Morning I was just thinking about you all yesterday , I did exactly the same with my feeding tube , when I went into icu they put a longer one in ,it is a very bumpy road and a lots of ups and downs , keep strong , best wishes to you all michelleanne
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Hi helen i do read , and watch the television on a night , also knit easy patterns , I love peace and quiet and being outside , our grandchildren keep me going and look after me very well even though they are young , reading other peoples messages give you hope , as only people like us know what’s it’s like best wishes…
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That’s good news gives me hope , I’ve gone 2 years , I’m 59 it’s very hard some days mentally and physically , my moods are very changeable and my memory is so poor , I just get on with how I feel that day , I’ve been like this on and off for 25 years since having Hodgkin’s disease now with leukaemia and my bmt wonder if…
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Hi Helen I was in hospital 8 months right through covid lockdown I have dry skin and sore mouth and throat , it is something we have to live with and keep taking medication , as I say this is a new way of life now I’m not the person I was before I take each day as it comes best wishes michelleanne
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Hi audrey & babs So sorry to hear , you are having a worrying time, keep strong hope you turn a corner soon best wishes michelleanne
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Hi you’re very welcome , I hope it helps you and your daughter , let’s hope for better news keep strong michelleanne
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Hi sounds like we’ve all been through the same , we are in a very special club the survivor’ s give you’re daughter our best wishes michelleanne
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Hi audrey hope all goes well with the trail , best wishes michelleanne
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Hi audrey i spent 7 months in hospital during lockdown , I couldn’t have any visitors , things were touch and go a few times I couldn’t eat I lost so much weight ,was given a feeding Tube had time in intensive care can’t remember all of it , there were times I didn’t think I would come through it , but here I am 2 years…
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Hi Audrey how’s things going , hope all is ok michelleanne