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Michelleanne
Comments
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Hi audrey im so sad to hear about you’re daughters bone marrow tests , I hope you get better news next week , you will all me in my thoughts and prayers , keep strong always here for you take care much love michelleanne
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Hi all I had a chest infection at Christmas 2 lots of steroids & antibiotics still have it but they say it’s viral , I was told when needed to use my wheelchair but I feel such a fraud , hope everything else was aswell as it can be happy Easter to you amazing people wish I could give you all a hug , I’ll send one virtual…
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Hi all im not on them meds , I’ve had m.e for a longtime since having Hodgkin’s disease so having my bmt hasn’t helped , some days I feel great and other days I can’t do anything I think the mood swings are also my age I’m 60 in a few months, my brain says I can do everything but my body says no. hope you all get the help…
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Hi helen i wonder how Dave is , hopefully they’ll be able to help , we all do need to rest , even you audrey and look after ourselves much love michelleanne
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Morning all i do get concerned about Dave and your daughter audrey , I also hope you are getting stronger helen im like a zombie and weiry first thing in the morning and early evening sometimes all day , so I try and do things when I can I was told normal is a cycle on the washing machine , as we are all different I think…
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Hi audrey sorry to hear you’re daughter is back in hospital hope she feels better soon im not too bad at the moment apart from aches and pains , enjoying time with grandchildren outside now the weather is a bit better . how are you ? best Michelleanne
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Hi all you are really going through bad times with you’re gvhd , I have it in with my skin but no where near as bad as you , I really hope you can get it sorted soon , I would say my eating is worse than my skin , sore throat and no taste buds together we will get through this take care and much love michelleanne
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Hi Dave T i totally agree with eating habits , I’ve changed so much with food , I can’t drink instant coffee or anything fizzy and no alcohol I’m so boring . I hope you can get you’re gvhd sorted out soon take care best wishes michelleanne
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Hi helen were really lucky here that we have the nhs so I’ve had all my treatment through that i agree eat what you fancy , enjoy you’re weekend michelleanne❤️
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Hi all it took me a good year before my weight gain , now my weight is upto what I was don’t think it’s as much the amount of food , I have trouble with my thyroid it’s very hard to eat properly , I eat soft food and I eat more sweet things , I never really fancy food try rice puddings , milkshakes or hot chocolate , my…
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Hi all I’m still on nearly all my meds , the drs reckon I’m going to be on them for years , it’s weird that we all take different ones , it’s a good job we have the nhs or similar as we couldn’t afford the treatment I hope you get sorted soon with some form of meds to help you , that’s one thing mine gvhd is mild hope all…
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Hi all jan 3 you are doing great , I wish I was as far as you , I’m 2 years post bmt . we all have good days and very bad ones , I find the hardest part not doing what I want when I want , the best part is having my husband with me all the time he’s my soul mate. . I’m enjoying spending time with our grandchildren but they…
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Hi Dave sorry to hear you are finding things very difficult , I have some days when all I do is sit , and have very dark days , you are such a fighter and a very strong person , I find it easier to go one day at a time try not to be so hard on yourself , always here for a chat if that helps keep strong take cre best wishes…
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Hi all, hope you are all ok , helen I hope all goes well in the clinic , my blood tests are ok I’m going to hospital every 5 weeks to give blood to get rid of the iron , I’m still on all my immunosuppressants my legs ache and swell up my gp says I’ve just got fatty legs they don’t understand , pleased you enjoyed you’re…
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Hi helen I’m not too bad , enjoying time with the grandchildren , not enjoying the snow and the cold weather , we are doing well as we can be , be very proud and thankful for everyday day , even when it’s a bad day with raging hormones and everything else lol hope you are doing ok love michelleanne
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Hi audrey we are all on a roller coaster , I didn’t expect it to be as bad , im really looking forward to that enjoying spending time with family how’s your daughter ? take care michelleanne
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Thanks all that helps a lot michelleanne
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Hi audrey not doing too bad , went for my blood tests yesterday and a lung function test , so have to wait for the results , can’t wait for the warmer weather I love to see everything coming to life after the winter. that’s wonderful news about you’re daughter take each day as it comes I still get very frustrated…
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Hi audrey sorry to hear you’re daughter is back in hospital , hopefully not for long I went through all of that , it worries me going where there is different people about and strange places , but I love been outside , it will give them something to look forward to later , we are all in good hands , we would have been in a…
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Hi helen i had my bone marrow transplant 2 years ago I have a 23 year old German man bone marrow im not too bad got a chest infection so I’m on a lot of meds , we take each day as it comes and enjoy Thankyou for the support it means a lot xx
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Hi helen I have to moistures not every day , only when it flairs up , hope you’re lab results are ok when they come back , I’m in the uk I don’t get my results on the same day I’m still on all my meds I was on in the beginning my blood isn’t high enough to come off them Hope you are peaceful good night god bless xx
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Hi Helen please do I’ve been to see my gp today for steroid and more antibiotics , then bloods taken on Friday and chest X-ray next week , what a exciting life we lead , I hope all goes well for you xx
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Hi all audrey it’s so good to hear you’re daughter is improving slowly , and you also helen , I like super noodles , I eat a lot of fish very little meat as a I can’t swallow it , it takes so much out of you , I find everyday is a different battle we get through it as long as we are all at home and enjoy everyday and every…
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Hi audrey thankyou for that , you are all a big help to me ill have a look at that site myself for fatigue michelleanne xx
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Hi audrey, so sorry you are feeling unwell hope you feel better soon, that’s fantastic news about you’re daughter , I’ll raise my cuppa to her , hope this is start of better things to come , i think about you all everyday , but I don’t want to pester , hope helen & Dave are doing ok much love & best wishes michelleanne
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Hi audrey please keep going with the update , it helps me also , knowing what I’ve gone through , and what’s happening and my feelings are ok best wishes michelleanne
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Morning all audrey I really hope all goes well with your daughter , I was exactly the same , the wait makes you feel very anxious , I was pumped up with different antibiotics and had my lungs cleaned out it’s a very rough time , but I turned that corner and so will your daughter it’s a up hill struggle and we have…
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Morning all sounds like we are all going through things at different stages , I’ve put most of my weight on , but I think it’s more my thyroid , than what I eat I feel everything thing is a marathon at the minute , I hope your plan works it’s worth a try we’ll get through this together lots of love michelleanne
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Hi Dave I had a feeding tube , which affected my throat and made me sick , 27 months post bmt, still struggle with food , my throat still gets so sore , don’t have good taste buds . I hope my love of food comes back , I would be a cheap date if we went out , as I can’t drink alcohol anymore as that makes me sick I joke…
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It is helen , lovely to have people who understand big hug michelleanne