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Michelleanne
Comments
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Hi audrey lovely to hear from you I totally agree with what you say it’s so hard for everyone patients and loved ones alike I can’t even imagine what as a family you have been through with loosing you’re son then you’re daughter I don’t know hope you have coped I’m in awe of you 🥰 I think everyday of my happy place even on…
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Hi helen pleased to hear it’s brought you all closer as a family , it has with us also , but sometimes a feel lonely don’t know if that’s with 8 months in hospital hope you will be home soon keep enjoying the birds singing keep safe and take care ❤️
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Hi all helen I think this illness to effect emotionally just as much as our mind and body it’s a very big change to our lives ,some people manage better and quicker than others I glad you feel comfortable to talk about things it’s as good as therapy lol and if it helps us all do it audrey you have been through a dreadful…
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Hi dave im so sorry to hear , you wife is not with you that is awful , I can’t imagine how that feels maybe talking to someone will help put things in prospective I know it helped me and it give me peace of mind I don’t want to know what’s going to happen in the future , I live in the present otherwise I worry you will get…
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Hi all helen hope all goes well tomorrow and you soon get help with your skin , to all we will all get there together in our own way & at different times always here for you all , no matter how bad you feel you are never alone hope you never forget that life is so different , it takes a lot to come to terms with I can’t…
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Hi all dave you are a fighter too , don’t be so hard on yourself , think of what you have been through , I don’t go on Facebook or anywhere else to read about my illness I take it as it comes , I don’t want to know what can come or how things will be I just take one day at a time other wise it would frighten me and that’s…
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Audrey i meant to say what a amazing thing you’re son did for other people and your other daughter helping too ,I bet you are so very proud ❤️
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Hi audrey i wouldn’t want to leave my daughter , even in good hands , I know I can’t manage a holiday , so we’re having a day trip on the flying Scotsman with lunch in the Pullman carriage on our way to Edinburgh hope you are ok helen michelleanne❤️
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Hi dave i hope so , look forward to a nice holiday , where would you go ? We haven’t had a proper holiday for years I couldn’t manage a cruise now , we bought a holiday home so we are there regular , and I’m content with that , and we are having a trip on a steam train for the day in September as it’s our 40th wedding…
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Hi Dave that’s good news , I hope you do 🤞🤞🤞I bet you feel better knowing that hope all goes ok michelleanne
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Hi dave i had bad mottled skin no open wounds , my skin is dry , tight I use hydromol ointment it’s like Vaseline for washing and as a moisturiser my eyes are dry and gritty , my legs feel like a balloon that is over stretched they are painful from the knee down but I am very lucky to be here , so I soldier on otherwise…
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Hi dave its so nice to hear from you , I’m so sorry you haven’t being feeling better you will get there one day at a night , I am doing a lot better than you and Helen , things are so different than before , but I can cope in my own way i had counselling from a lovely lady from McMillan nurses she was so lovely and helped…
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Hi all helen I’m so sorry we are struggling at the moment I hope they can help you and you feel stronger soon pleased you had a nice weekend , we did but also exhausting had our daughter and granddaughter staying with us at our holiday home love the dearly but I get so tired I don’t class myself as a hero , the people who…
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Hi audrey your news about you’re daughter is great , it’s so wonderful to hear better news from everyone Dave I hope you are ok ? audrey this group is for patients and family so you are included , it’s a great relief for me to hear everyones progress as it helps me so much , I still lateral flow tests , and wear a mask…
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Hi all helen so pleased you got a boost , the classes sound good we don’t have anything like that , but we are very rural, see what your gp has to say about that system , you seem very organised with you’re sclerosis we all find things that help in our own way . my eyes have started to ache , dry and sore on trying eye…
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Hi all helen I hope everything goes ok , thinking of you keep strong lots of love & best wishes audrey hope you’re daughter is doing ok hope things are improving slowly , hope you are well too hi Dave haven’t heard from you in a while hope you are ok don’t ever forget you are never on your own I’m still getting over my…
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Hi helen thats good news , hope all goes ok and you feel a little better , afterwards I’ll be thinking of you hope all is ok with you Dave & audrey have a lovely weekend love michelleanne
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Hi Helen you sound a bit down,hope you are ok I told my professor all about chatting with you all , he said what a good idea it was lovely to catch up with people , they all sailed through it home within a few weeks no patients from when I went in positivity is the only thing that keeps me going some days I enjoyed the few…
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Hi all audrey I’m so pleased for you and you’re daughter and her family that things are going well it’s lovely to hear , we have 3 grandchildren 9 , 4 and 18 months they are always on the go and tire me but we enjoy them so much . helen hope things are going ok and they are listening to you Dave how are you ? Always here…
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Hi dave yeah I do my ankles and knees ache , mentioned it told to see gp , they say restless legs they ache so much i memory is so poor some days I feel like I’m loosing the plot I just take each day as it comes always here to chat if needed take care xx
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Hi all helen I do hope they listen to you and you get sorted I don’t think they really understand they do the medical side but that’s all or that’s how I feel please don’t get angry keep you’re energy for yourself I know it’s easier said than done I was in hospital yesterday for my 5 week appointment for my venesection…
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Hi helen hope all went well at the clinic and everything goes well with everything else thats what I get told , don’t be so hard on yourselve try light exercise but nothing works some days are better than others night night god bless xx
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Hi all weekends are lovely we don’t have to think about appointments I do that with my meds , they always knock me out a bit I’m never up early you have all made things better for me , we have a good little group here and hope it stays like that as it helps me so much i know talking to you all I’m not going mad thankyou…
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Hi audrey it is a long journey , harder than I ever thought it would be , never mind at least we are all still here enjoy everything anyway we can hope things are going ok love best wishes xxx
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Hi Dave not sure what causes to joint pain , I’ve been told to just go to see my gp i feel sad for you that you can’t get the medication you need , I hope they can find something to help you. I haven’t driven for 2 1/2 years I’ve no interest now, even going out I’m so tired and my joints ache I wonder it it’s worth it.…
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Hi helen Sorry to hear you’ve had a challenging time there’s always something , hope you get sorted soon I just take paracetamols I’ve been told to get eye drops , my skin is flaring up too every achievement makes you feel good hope this continue you all like super hero’s xxx
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Hi all dave I hope you start to improve soon , my eyes have started to feel very dry & gritty just in the last few months , awful pains in my hips . always here for you if needed even just for a chat Hope you are ok helen ? best wishes michelleanne
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Hi audrey that news is wonderful , you and you’re family have been in my thoughts a lot this week , I know how you feel you have a good cry you must release it , at least it’s for happy news lots of love and best wishes you’ve made my day give you’re daughter a big bear hug from me and my family , and her to hug you very…
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Hi audrey always here for you , please keep in touch xx
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Hi audrey i pray everything goes well for you’re daughter , I know what a worrying time it is my tests came back like that ,so I had to have a bone marrow transplant , you have had it just as hard , you are also amazing and very strong always here for you lots of love & best wishes you’re daughter has everything to fight…