Please read the house rules and keep this community safe for yourself and others.
Michelleanne
Comments
-
Hi audrey you are very welcome , I’m pleased it helps , I wish I had know about the forum before , it helps a lot talking to people who have gone through it . so sorry to hear about you’re son , it’s a very hard time for you, hopefully you are turning a corner best wishes michelleanne
-
Hi Audrey I went through exactly the same , it is a awful time , my husband says he feels so helpless , I hope the ct scan comes back ok . hopefully this is the turning point for the infection keep strong best wishes michelleanne
-
Hi audrey great to hear you’re daughter is a little brighter and her markers are coming down , keep strong michelleanne
-
Hi I was exactly the same , I had my ecg in bed because I was so weak , my temperature was very high 40 plus spent time in intensive care & 7 months in hospital without seeing my family because of covid . but I have a wonderful team at freeman’s hospital that pulled my through and still keep me going , they tell you how…
-
Hi audrey hope things are a little better this week , that was a regular thing for me , I had to have nurses take me for a short while , I would have Starbucks drinks of cold ready made coffee , milkshakes and icecream , then I lived on cream crackers . it is a very hard time a lot of ups and downs , I still take everyday…
-
Hi , Audrey I went through the same during and after my transplant , I had a tube in my nose down into my stomach , I slept a lot and a very high temperature ,once they got my meds right .everything changed and turned a corner , I enjoyed drinking ready made creamy iced coffee , and my husband would bring in what I fancied…
-
hi , I had my transplant in the height of covid and I went in the week of lockdown and apart from 7 days at home I was in 7 months , we have kept ourselves so safe , and we really don’t mix with people
-
Hi dave i have all the problems you are talking about , I was diagnosed in 1996 with non Hodgkin I was left with chronic fatigue I was told then just to get on with it . then in 2020 with aml and had a bone marrow transplant 2 years ago , and everything is so much worse , now I pace myself if I know I’m doing something one…
-
Thankyou I’ll have a look at that
-
Hi Steve I totally agree with everything you say I am so content with everything michelle
-
Hi steve it is the very hardest thing I have ever been through , it was touch and go a few times made harder with covid , not being allowed to see anyone , hard for my family . I have a amazing team at the hospital and a wonderful family , they support you , but don’t understand . i say this is the new me , the old me…