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susie

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susie
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  • Hi Julie, thankyou for your quick response - did your son have AML and ALL, bit confused sorry? and did he have radiation as well as chaemo? did he have any mutation? glad he is doing so well. have to ask how the **** did you get through it, and moreso coming up to the transplant, after yesterday's appointment we just feel…
    in transplant Comment by susie August 2015
  • Hi iwarne87, thank you for replying as we have found it very difficult to find someone in similar circumstances ie having AML. Did you have the mlt3 mutation at all? did you have so many chaeo cycles, if so how many, and then relapse to be offered a transplant or was that always planned and it took 2 years to get it? was…
  • Hi, new to the site but noticed your question, although it is from January, how have you gone on. Where abouts in the country are you/which hospital? Did your first transplant fail? We understand in our area my child could only have one transplant but obviously this can't be true? Look forward to your reply