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kw13

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kw13
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  • An interesting question. I don't know the answer I'm afraid. I am assuming that there is a lot of testing involved, and the potential donor may not be available to come in straight away (even if they look as if they match from a small sample, I think that more tests have to be done to check this and then do more tests). I…
    in Time from donor blood sample to confirmed match Comment by kw13 July 2015
  • Tiredness: take your time. Try and realize that it will take a while to get back to normal. Start to think about what a new normal might look like. Use your friends and family - can they do getting the ingredients (for example) and then you can still do the cooking? Have honest and open conversations over time about what…
    in We'd love to hear your ideas - Top Tips Comment by kw13 June 2015
  • Dear Rob My husband had a BMT at the Churchill almost 2 years ago now. The staff/hospital/care etc were absolutely amazing. We live locally and being able to visit made everything easier (we have a young son as well). Small things that made all the difference: being able to visit any time of the night or day, being able to…
    in Awaiting a BMT. Does anyone have any experience of the Churchill Hospital in Oxford? Comment by kw13 February 2015
  • Dear AMB. Good luck for the 23rd. Hope all goes well.
    in Advice on getting through stem cell transplant Comment by kw13 July 2014
  • Dear DieselDrinker62. You pose some interesting questions. My husband had a BMT (after having several of the treatments that you mention). It wasn't much of a choice really - and he was, luckily, matched up really quickly. Post-BMT his issues have been around fitness - he is about to lose his job because he can't get back…
    in Advice on getting through stem cell transplant Comment by kw13 July 2014
  • V interesting. How do you go about contacting your donor? My husband (who is just a year post-transplant) would love to write. If someone could post a response that would be really helpful.
    in A donors perspective Comment by kw13 June 2014
  • Brilliant. I have been looking for a list of books that might help with discussing leukaemia with a 7 year old for ages. Much appreciated.
    in The Ripples! Comment by kw13 June 2014
  • This is a hard one. The NHS only has so much money - and I, for one, want to see that going into clinical work; however, as the spouse of a post-SCT AML patient, I have also seen at first hand what the lack of psychological and emotional support is like. My husband's team at the hospital were very generous with their time…
    in Emotional and psychological impact? Comment by kw13 June 2014