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josiemoss
Comments
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Well, sadly it's not the meds. The leukaemia has returned already so we are looking at options to give me as much time as possible. First priority is to get well and get home from hospital to be with my husband and children. Thanks for all you ongoing support
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Thanks Billie I have e nailed Chiara xx
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Hi there, I had my check up this am and neutrophils had dropped but they weren't concerned at all. Said its really normal, it was red and white and platelets they were talking about more .
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Docs just been in. I'm 0.1! Knew I felt different this am though that probably sounds weird
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Hi, yeh it's day +4 and the sore TBI mouth is incredibly painful. Starting to struggle to swallow/eat but docs have now prescribed some liquid oramorph so we will see how that goes. Other then that just plodding through each day and waiting for that magic day! Think we have at least a week ahead yet I'm guessing though? X
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That's great news. I think the neutrophils are the important little ones to get going. Keep going, well done you.
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How are the cell counts Alfie? From a day +1er!!
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Thanks so much x
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A week today until I go in Peter, transplant in the 18th. Having a lovely week spoiling my kids and spending time with family, like you Lola I'm also trying to get the house in order so I don't come back to chaos (while also trying not to over do it!) I'm sure I won't be completely useless and I'm taking my laptop etc with…
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Thanks all, great tips. I think I'm struggling because I'm still an in patient at Worcester as I'm neutropenic. They are letting me out during the day but I just want to be at home, tucking my kids into bed and doing all those little jobs to feel like I've got things organised before I go in. Even though the transplant…
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I think from what I have been told there are numerous stages to the testing process, I needed a 10/10 match and it took a number of lots of blood before they had tested each thing that made that 10/10.
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Well we have had the news that they have a 10/10 match and my transplant is set for August. How is it possible to be overjoyed and completely petrified at the same time?!
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Thanks Steve, I went to the QE yesterday, they now have the bloods from 2 donors here in the lab and took a lot of my blood. Trying not to get hopes up but guessing that means things are moving along
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Thanks both. I've heard that 4 potential donors have been found and have my transplant meeting at the QE in Birmingham tomorrow. Scared but weirdly excited at the same time.
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Hi Lola, My situation is slightly different, I have had lots of chemo prior to transplant so I did make the decision to shave my head as I was losing huge clumps, it was very traumatic having it come out in e shower and on the pillow etc. in your case it doesn't seem as guaranteed that's it's going to go so I'd maybe wait…