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colinparker1967
Comments
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Peter I have just taken a look at my old tablet list and you are right. It is a pretty good record of the progress that we have made isn't it. Colin
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Yeah, like swallowing the Hindenburg! Actually the worst thing about the Ciclosporin I found was the smell. I was taken off Aciclovir because it was affecting my liver and put on Famiclovir instead which is not soluble, although I have to admit that I always use to dissolve the Aciclovir and take it in a plastic cup. I…
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Peter, that sounds brilliant. Good luck!
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Peter Interesting, I wonder which size tablet did you find the worst to swallow? Weirdly I found the 100 and 50mg tablets ok but the tiny 10mg a complete nightmare - kept bouncing off the back of my throat... Very difficult to swallow
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Before transplant my wife and I use to go hiking most weekend so finding that the end of the street was a bit of a challenge when I came out of hospital was quite a shock. I use Runkeeper on my phone to track the distance walked and have been steadily building up in half mile increments. Regular walking is one of things…
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I start all interactions with people I haven't seen for a while with an "are you well?" from a distance! My unerring experience is that once people understand that I am serious and that the health threat to me is real they self-police.
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You could well be right Dieseldrinker62 - who knows! The consultant did say that a lot of people report that food tastes normal after the Ciclosporin is stopped but they don't know why! The good news is that we're not stuck with dodgy taste for life! Pleased that you are finally of the Ciclosporin - GvHD is a pig isn't it
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I had my transplant mid February last year and they started reducing my Ciclosporin mid July. It took until September before I was clear completely because they wean you off gently. In particular I found that milk in tea tasted so creamy as to be sickly, I also found that I had a slightly upset stomach most of the time…
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I am a freelance project manager so taking a year out for the treatment was a bit nerve wracking to put it mildly. As soon as I was able, I arranged to do some work with my professional association (the Association for Project Management) on a voluntary basis remotely. They were (and are) a great bunch and it really helped…
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I found that my taste returned to normal after I finished on the ciclosporin