Hello!

It looks like you're new here. If you want to get involved, click one of these buttons!

Avatar

Howdy, Stranger!

It looks like you're new here. If you want to get involved, click one of these buttons!

Sign In Register
Please read the house rules and keep this community safe for yourself and others.

Renate

About

Username
Renate
Joined
Visits
9
Last Active
Roles
Member

Reactions

0Helpful0Insightful0Supportive0LOL0Spam

Comments

  • I ddi the survey very quickly on my tiny phone screen, but I would have liked to leave some comments
    in Anthony Nolan - tell us what you think Comment by Renate October 2014
  • I went to Germany last week and met my donor, a young woman who lives 2 hours away from my Mum in Baden Wuertenberg. I had expected it to be more emotional, but she kept me at an arm's length, which is ok. From the emails we exchanged I realized that she did not want to be overwhelmed by my huge gratitude or think about…
    in Here's Another Story Comment by Renate October 2014
  • I don't even take travel insurance when abroad, Europe, NZ & US. Like to live dangerously, don't seem to worry anymore about potential consequences.... And there is EHIC for Europe and NZ has something similar to the NHS, just no excuse for America!
    in Travel insurance for a weeks' break in the UK? Comment by Renate October 2014
  • Welcome! I must get more active myself here...
    in New Community Champion Comment by Renate October 2014
  • Thank you for the info.That Holiday safe sounds good.. I'll check it out. I am still travelling without insurance, willing to take the risk. It's alright in Europe with the EHIC and decided not to worry about it in the States. having lived through this experience made me worry less about some things (and more about other!…
    in Here's Another Story Comment by Renate October 2014
  • I'll be meeting my donor next week in Germany! I am so excited. Wishing you all well.
    in 2nd re-birthday! Comment by Renate October 2014
  • My husband came to see me very day; it was a 40 min busride for him each way & waiting time or a lift form a friend. he was my rock and my light. We watched movies, played board games, walked around the hospital, even when it was not allowed. he went through the whole experience with me, if not in bod, but definitely in…
    in How to support a bmt patient Comment by Renate October 2014
  • I developed a very strong liking to roast chicken legs after my transplant and I was a vegetarian before. My donor loves meat, so it must come from her cells :). Over 2 years on, I still indulge...
    in Cravings! Anybody developed weird ones post transplant? Comment by Renate June 2014
  • Hi Peter, I go to UCLH in London for my check ups, a brand new Macmillan centre, and my 2 years will be up end of April. I have been writing anonomous letters with my donor in Germany and I can't wait to be able to get to know her. She seems quite keen. The check ups are always a worry and reassuring at the same time. I…
    in Recent check up Comment by Renate February 2014