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Moirplace
Just to update. Docs stopped my daughters ciclosporin altogether and her next marrow aspirate was clear. Docs are now saying her relapse may have been hematogone cells and not leukaemic blasts. Her marrow is still not fully functional thou and we are waiting results before docs decide if she would benefit from a top up of stem cells from the same donor. So very grateful she is cancer free though. X
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Beckybram that is very reasurring hearing that the top up is as simple as a blood transfusion. Hope hers is this simple because she hates staying in the hospital. Fingers crossed for good results and donor agreeing to give more cells. Many thanks and best wishes. X
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Hey guys thanks for getting back to me. Greg it was very encouraging to read your counts came up on their own and it's reassuring to hear you're doing well now. I know my daughter gets IgG every 5/6 weeks and when last checked chimerism was 100% donor. Bmt/a getting taken tomorrow. Results prob be two weeks going on past…
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Doctor came in and advised us yesterday that CAR-TCELL therapy has been put on hold in the UK at the moment. It might resume at the end of the year but she's not sure. At them moment the doctor is suggesting pressing ahead with blinotumumab and hoping the tcell therapy will start later. I have been looking online at trying…
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Thank you so much guys. I'm not sure how this forum works so don't know how to reply to you individually. I too have been looking online but only seem to find scientific research papers and they scared me. Dieseldrinker62 could you send me the link to the article about CAR TCELL?? We have yet to find out if she will be…