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Meldidd

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Meldidd
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  • Hi I am in a similar position to you but a bit further forward. My friend (won’t call him my partner but we’re as close as) had his stem cell transplant in January. He’s 45. I am the one who’s there for him as he has no family close by. My journey was 1.5 hours to the hospital and I did it every weekend without fai…
    in CARERS / PARTNERS Comment by Meldidd September 2018
  • Thanks RobA, he is getting a bit down in the dumps with it. I guess there’s been a lot of trauma to your bodies. His appointment with the transplant team was today and they’ve suggested he ups his steroids a bit. This certainly cleared it the last time but I guess it may return when he weans off them again. Thanks for your…
    in Diarrhoea 6 months post stem cell transplant Comment by Meldidd June 2018
  • Thanks Rachel and Steve, your input and advice helps a lot. I now realise that what we are going through is par for the course. He wasn’t admitted that day from the clinic. They think it was c.diff and not GVHD. Yesterday he seems to have turned a corner and got a few bits and pieces done, as well as going food shopping…
    in Almost 9 weeks post transplant...slump Comment by Meldidd March 2018
  • Thank you Hayley_Anthony - this is very much appreciated. I may take you up on your offer at some point x
    in AML Post Stem Cell Transplant Comment by Meldidd March 2018
  • Thanks Nick63, and indeed all of you who have taken the time to write. I find it all very encouraging to hear all your stories and advice. Fortunately he is making every effort to try and do a little (more) each day. He is generally very fit normally and before diagnosis would play 5 games of racketball a week and cycle…
    in AML Post Stem Cell Transplant Comment by Meldidd February 2018
  • HS17 - thanks for getting in touch. It’s encouraging to hear the real stories. Sounds like you’ve pretty much described how things are with my friend at the moment. It’s going to take time I realise. I hope you are continuing to get fitter and healthy again
    in AML Post Stem Cell Transplant Comment by Meldidd February 2018
  • Thanks Greg, you have no idea how nice it is to receive such feedback. Indeed it is a rollercoaster. I have already counted out the 100 day mark on my calendar, thanks for that. Everything right now is exactly how you put it in your reply - 3 steps forward, 2 back and so on. It's going to take time. Thanks for your input.…
    in AML Post Stem Cell Transplant Comment by Meldidd February 2018