Please read the house rules and keep this community safe for yourself and others.
KatieS
Comments
-
Hi Gail, I've had an auto stem cell transplant in September 2017. All of my blood counts are still low, hb around 80-90 I have a transfusion once a once, platelets around 20 and neutrophils all over the place. They have recently told me they think it is aplastic anaemia caused by the total body irradiation I had. They are…
-
Hi Pam, Thanks for replying to me. It's good to hear from you. Thank you for your kind words. I really hope your Husband starts to recover from the Allo transplant soon. It must be so tough, especially having gone through an Auto so soon beforehand. So far its been three months post transplant and my blood counts aren't…
-
Thank you Sue, yes i did see that article. Very interesting. Just to let you know I am right in the middle of an auto transplant now, I am on day -6 so I've had all my radiotherapy and total body irradiation, which has left me burnt and with grade 1 mucositis. Waiting to start me chemo later today. The one thing i am…
-
Thank you all for taking the time to reply to me. I really appreciate it. I seem to be focusing so much on the fertility side of things at the moment, that it is almost blurring my thought process as to whether I want to go ahead with the transplant at all. It's an odd one for me, as I leukaemia free at the moment and that…
-
Thank you guys, really appreciate all your comments and support. It means so much to me. I will keep everyone updated. Starting the stem cell harvest at the end of the month, so it's all go! Kate.
-
Thanks so much for telling me that Greg, you have been through so much and are doing so well, amazing. I too feel like I am experiencing some massive lows right now. I am a positive person generally, but i just feel like I am struggling massively at the moment. You are totally right though about making the decision and…
-
Thank you so much Steve and Greg for getting back to me. I really appreciate it. I actually feel so overwhelmed by the thought of the transplant and going through it all. I think I am more worried about how I will feel in myself afterwards and whether of course it works. I have been told that a relapse in my CNS is not a…
-
Hi Steve, Thanks so much for replying. Yes APML is a rare subtype of AML. It's rare for an APML patient to need a SCT it is only offered when you relapse. I am struggling to find information on it regarding APML. My treatment has been a mixed bag so far. I started with three rounds of chemo, the AIDA regime, after the…