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EDawson
Comments
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Hi Kitty, My husband's cyclosporine was stopped pretty rapidly after transplant because of kidney problems; they then recovered. My husband was started on MMF, 22 months post transplant, and it was a really good choice. I think he experienced some aches and pain as he started it but was on a huge dose. Aside from that, it…
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Hi Mandy, Fantastic to hear about your brother's progress; sounds like he is doing well. My husband is 2.5years post-transplant and his skin is incredibly sensitive to sunlight. We had been told to expect that anyway but we have been led to believe it's particularly bad because he's still on a drug called Voriconazole. I'm…
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Hi Becky, My husband had 2 DLIs to try and top him up (his figures were very similar to yours). After the second, he got GVHD so they stopped them. It's coming up to 2 years since that second top up and the chimerism has just continued to creep up so they never looked at re-topping (it is in the 90s overall now and they're…
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Hi Cynthia, I haven't posted here before but have been having exactly the same issues as you so wanted to drop you a line. My husband had his transplant in November and food has been a real battle but we have turned a corner this last 2 weeks, roughly 4 months post transplant. Since he came home from hospital I have broken…