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Colin

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Colin
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  • Glad its going ok so far. I never got any answers as to why it had comeback after such a long period. I had done an intense job for a 3 month period before relapse but the experts doubted that it was the cause. I felt tormented by the fact no one could explain a unique situation. None of the Doctors knew of anyone who had…
    in Relapsed AML after 17yr post stem cell transplant Comment by Colin July 2022
  • Hi Beaglegirl. I posted a few years ago on this forum because I had relapsed into AML after 4.5 years. I had to have the chemo and bone marrow transplant again. 5 years on I am still in remission. Mentally I found it really difficult feeling you are the only person to ever relapse after such a long period. Obviously 4.5…
    in Relapsed AML after 17yr post stem cell transplant Comment by Colin July 2022
  • My liver still hasn't settled down. It's now only reading about 73 instead of 45. At times it's been 10x the recommended level. I am told it is GVHD and not to worry. I hope your liver problem is something similar
    in 2nd stem cell transplant Comment by Colin May 2020
  • I'm pretty good. Still have some GVHD but my specialist says I have the "Goldilocks" amount. My liver is slightly inflamed but most of the symptoms are negligible. It's definitely a slower recovery this time. I never went on this network in 2017 as I felt my story was negative and I didn't want to scare people who were…
    in 2nd stem cell transplant Comment by Colin April 2020
  • Hi Jane. I've done a 2nd transplant for AML and I'm still here. Diagnosed in 2012. Transplant from an unrelated donor. Perfect recovery, or so I thought, until I relapsed after 4.5 years. My specialist suggested I go for a 2nd transplant from the same donor as the first one had worked so well. This time they gave me the…
    in 2nd stem cell transplant Comment by Colin April 2020
  • I lost a load of weight about a year after my transplant. My consultant said it was GVHD and it would sort itself out in time and not to worry. He also said keep eating. Good luck.
    in weight loss Comment by Colin February 2020
  • Thanks Steve. Well done for looking after the forum and giving something back. I never posted in 2017 because I felt my story when I replapsed was too negative and I didn't want to scare people. I did get a decent amount of GVHD first time around ( if there is such a thing ) - mainly skin rashes. It took me around 18…
    in AML RELAPSE AFTER 4.5 YEARS Comment by Colin February 2020
  • Hi Jane. I nearly 3 years post a 2nd transplant for AML. Hope you are still progressing well. Colin
    in 2nd stem cell transplant Comment by Colin January 2020