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Cath
Comments
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Hi It is a while since I posted last but I just wanted to update you. Ron had his transplant on 9th Jan 2020. He was in hospital for 7 weeks due to slow engraftment. He is now day 134 and we have eventually seen the light at the end of the tunnel. He still gets tired but he is beginning to get his appetite back and is able…
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We have just been to see the consultant and she has said that my husband is well at the moment and doesn't need to have the transplant yet. He will continue to be monitored and hopefully he should have a few more years before he has to have the transplant. Thank you for all your words of support it has been a difficult few…
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Thank you Hayley I think the problem we have is understanding what will happen to him if he doesn't have the transplant. So the information you have given is helpful and I must find out more when we next see the consultant which is the beginning of February. Thanks Cath
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Thanks Greg for your insights. I am glad you are doing well, it is good to know that you have not regretted the decision you made. Cath
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Thank you both my husband's consultant seems to be advocating the transplant route as it is a cure but I think we do need to consider what happens if he doesn't have it. The disorder is rare so it is difficult to find out what life will be like without the transplant. We must ask the questions but part of me doesn't want…
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Thank you, it is difficult to make the decision to become more ill in order to get better. Best wishes to you and your family.