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Babs
Comments
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Hi Auds, So pleased your daughter is out of hospital. I am following yours and others stories, as I visit my daughter regularly at her home in recovery. Keep updating on progress. It’s a rollercoaster and life changing. This forum helps so much x
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Hi Audrey, Hope your daughters bowel symptoms are improving. She is having a rough ride, she sounds like my daughter in that she is a fighter and uncomplaining. I know that they are also strong for us and family too. My daughter is doing well thankfully. The virus/infection of bladder have resolved (taken a long time)…
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Hi Audrey. She had the BK virus for 11 weeks and then another similar infection. Her markers are minimal now but she still has stinging cystitis and is up frequently in the night. She is having more donor cells and a bone marrow biopsy today. She did have treatment probably the same as your daughter via the catheter which…
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Hi Audrey. My daughter has relapsed since her SCT 4 months ago and is due to have some donor cells again this week. She had BK virus for several weeks and also on the trial. Unfortunately she has then got another infection as well but hope is more treatable. Like you I am so worried and it is good to share information…
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Thank you for responses. She has not had any improvement. Unfortunately she now has raised markers for glandular fever, so frightened for her. Today has been given morphine. She is exhausted from lack of sleep. Regards Babs
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Thank you for your response Rachel. I hope her bowel starts to work soon and other symptoms resolve. She is very stoical but it’s a dreadful situation.