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2nd Transplant and my daughter is so ill

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  • Lindsay is like you, Michelle and has to have a venesection every four weeks .

    im like you, Helen and have low iron anemia. I’m on twice daily iron tablets but don’t really feel much better . Will just have to be patient.

    it so good to hear you upbeat and enjoying the gardening, Helen. I think the three of us have so many ups and downs and for different reasons .

    look after yourselves and sending lots of positive vibes . ❤️

    Liam_at_AnthonyNolan
  • My dr told me to take my iron before I go to sleep on an empty stomach. I take a tiny bit of vitamin c in water with it.

    cant nibble on things in the evenings though. Shame.

    the iron has made a big difference to me.

    now I’m just always indoors cos it’s so hot. Can’t cope in the heat.

    love to you both,

    helen

    Liam_at_AnthonyNolan
  • Hi

    we,ve hot spells lovely weather to hot for me unless I’m in the shade

    please the iron has helped you

    ive just finished another course of antibiotics so see how things ok

    take care ❤️

    Liam_at_AnthonyNolan
  • edited June 18

    Hello Michelleanne,

    something I found really helpful for the antibiotics is -poor translation- intestinal flora-

    last year I was on antibiotics that really grounded me, emotionally floored me… but after that horrible experience I always take “darm flora” (lactobacilli/ bifidobacteria/ streptococcus thermophilus… approximate spelling) .

    It even says in the antibiotics paper in the package that it can lead to low mood. Apparently It’s cos the lining of the intestine is where an important ingredient is made for the production of seratonin (as I understand it)the production happens somewhere else in the body but the building blocks are produced in the gut. The capsules of gut flora replaces the necessary ingredient for the “workforce” /bacteria to be able to produce it. It’s made a huge difference to me. Also my GP keeps a note of the antibiotics that work for me and those that don’t.

    I wish you luck and strength. They really knock us out… sending love. I hope they work.

    love to you both

    helen

    Liam_at_AnthonyNolan
  • Hi helen

    thats interesting , they really do knock us out never mind

    ❤️

    HelenSpeedwellLiam_at_AnthonyNolan
  • Hi ladies . Sorry that I haven’t been here for a while. A lot going on with grandkids and the trial is coming up on the 8th . As you can imagine, a difficult time !

    I hope that your latest lot of antibiotics are helping , Michelle and that you’re managing to get out for wee spells in the fresh air

    How is the garden coming along, Helen? Are you still having hot weather ? It has been very blowy here which isn’t too good for gardening so will definitely be out tidying up when the wind drops ThinkScotland has a climate if its own!

    Anyway, I think about you both a lot and really hoping you are both having a reasonable spell . ❤️❤️

    Liam_at_AnthonyNolan
  • just tried to upload a photo of my Ecosystem… LOL… aka garden.

    I’m in love with it but it’s very overgrown.

    il be thinking of you and family on 8th.

    sending strength and love

    Helen

    ps. Started more antibiotics today. I have a referral to a urologist to find out what the problem is.

    … I forgot to hit send and just found this as a draft.

    I went to see Ed Sheeran with my godchild this weekend. We had a disabled parking sticker and I took the wheelchair because of the heat , but didn’t need it.

    it was very special.

    night night you two,

    love

    helen

    Liam_at_AnthonyNolan
  • Hi

    Helen you sound so up beat it’s lovely to hear pleased you enjoyed your night out

    hope they get to the bottom of your issues

    audrey you will be in our thoughts for next week the weather has been so hot I’ve spent a lot of time indoors or in the shade

    always here ❤️

    Liam_at_AnthonyNolan
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