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Paulasmith
My name is Paula and I was diagnosed with AML in September 2022. This was purely by chance as I had not been ill and it was only discovered after I had a private medical in December 2021. I was told then that my blood work wasn’t right but they didn’t know why. Had a bone marrow biopsy in august and was told in September. I still didn’t feel ill and was working out regularly. Got admitted in September and had three rounds of gruelling chemo then a double dose of full body radiotherapy before having a cord transplant in February 2023.
I had lots of side effects the worst being sickness and I lost 2 1/2 stone. Was in a wheelchair when I was discharged as I was so week.
I am now my normal weight and exercise 5 times a week. Hair growing back and I’m feeling more like my old self.
this is a horrible disease but always believe you can get through it.
good luck to everyone going through this treatment
Comments
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Morning Claire. I am 18 months post transplant and when I think of my journey since then it is quite difficult to comprehend. I lost over 2 stone in hospital because I couldn't eat because of GVHD in stomach. I spent the first 3 months in a wheelchair as I didn't have the strength to walk. I was very fit before becoming…
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Hi. I am 18 months since transplant and still have a bit of joint pain. Before being ill I was extremely fit and went to the gym almost every day. I have found that slowly building up the exercises I did before have really helped my stiff joints. I am near 69 so this is to be expected. Worst in the morning, but I just get…
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Hi. Mine was actually better after transplant. I still get facial hair but it can be managed easily with tweezers. The rest of body hair has been greatly reduced. I guess it's something to be grateful for!!
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Hi. I developed food intolerances nearly 9 years ago after contracting Salmonella poisoning in South Africa. Gluten, dairy, pulses and a few others. I had treatment for AML September 2022, culminating in cord transplant in February 2023. I was very poorly in hospital after transplant and couldn't eat anything and my weight…
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Hi. I went on a cruise 12 months after my transplant and got it from All Clear. Quite expensive but think it was also because my husband has had cancer as well. They are very understanding and helpful.
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Thanks. I finished platelet transfusions over a year ago and stopped steroids I. January. I will keep moisturising and hopefully it will get better in time.
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Well done Laura that's great news. Ive just joined my gym again and it is so great to be doing normal things again. I am 18 months post transplant and have just signed up for a 10k swimming challenge for November. Going to practice at my pool today. All the best for the future, and keep positive.
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All the best Katy. Sorry to hear about the delays and I'm glad you are in remission now. I am now 18 months post transplant and 100% donor cells but still worry about it coming back, especially as I had no symptoms when I was diagnosed. Just have to live every day to the full and keep positive. Can't believe how far I have…
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Hi. My name is Paula and I had a cord transplant in February 2023. I had very sensitive skin on my arms and still bruise easily. I found that skin oil from Jennifer young (specialises in products for cancer patients really helped and also pure coconut oil. Hope this helps and your husband continues to improve