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Do you avoid the sunshine?
I've been pottering about the garden today taking advantage of the beautiful weather that has finally arrived. I have to be cautious in the sunshine though as I've had warnings from the doctors to either avoid the sun or wear high factor suncream. This is mainly because my skin GvHD gets aggavated by the sun, but also I seem to remeber I need to avoid the sun whilst I'm on Ciclosporin.
One thing I have noticed though is that I soon run out of energy if I am in the sun, even if I'm wearing sun cream. It's as though the sun saps my energy.
Does anyone else feel similar now that the days are hotting up?
One thing I have noticed though is that I soon run out of energy if I am in the sun, even if I'm wearing sun cream. It's as though the sun saps my energy.
Does anyone else feel similar now that the days are hotting up?
Comments
He was told recently that as his immune system had 'taken a hit' he was to be careful as he was more susceptible to skin cancer.
He always wears a hat and we don't holiday abroad in the summer.
Sometimes ,I think he looks like he has a silver glow ,caused by applying too much cream, and the steering wheel of the car is covered in white cream,small price to pay,
Last post was in September so I thought I'd bump this discussion as it’s been sunny for most of the country this week. Summer is on it's way.
What has helped you all to take care of your skin in the summer? Have you found anything in particular that helps with your GvHD?
Some people have noticed an improvement when they come off cyclosporine – has that been the case for you?
Do you also find you have to take extra special care of your eyes at this time?
Billie
Lots of sun block on exposed skin for me mostly face and neck, I have found that factor 30 minimum works for me
I usually keep my arms covered wearing cotton only shirts with long sleeves. The cotton also helps to stay cool.
I always keep head covered usually with a sun hat or baseball type hat which helps to keep sun of the eyes. I have promised myself a Panama straw hat for the Summer which will be a first for me! I am finding that my eyes still get watery in bright sunlight so I'm thinking of changing my glasses to a reflector type.
I am still pleased that so far I've not been troubled with hay fever, it's probably a bit early yet but like others have reported, for the last 2 years post transplant I found I was cured of it.
Whenever I have mentioned eyes issues at clinic, a course of drops has always cleared them up after a couple of weeks.
Peter
I'm just back from a 'Men's Skin Care/Well Being Event' hosted by Macmillan at their Centre at the University Hospital South Manchester. The event was a first for men and was presented by Boots staff including a Pharmacist. There were half a dozen men present and the main issues were dry skin, none of us wanted to try or discuss anti ageing products. It was an interesting session. The staff are in a partnership with Macmillan so they were sympathetic to the various issues we have.
I really want to say having spoken to the Pharmicist, he strongly recommended a factor 50 sun block for me.Time to get rid of the factor 30.
Peter
My GvHD appears to be under control now and I'm almost off Ciclosporin at last, but I was disappointed to hear from my consultant that I'll always have to be cautious in the sun to avoid the risk of the GvHD returning. I was hoping someday to go to sunny climes on holiday and would love to revisit the Carribean, but I guess wherever I go I'll have to keep smothered in sun cream and sit in the shade, which seems a waste of a holiday.
I'm pleased to say though like Peter my hayfever doesn't seem to be troubling me any more. Usually at this time of year with the blossom in full bloom my eyes would be streaming from the tree pollen. I haven't had any bother all with it so I hope that's something that continues. Perhaps it's a hidden benefit of a transplant?
Steve